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The Thing about pain management…
Pain management is a really tricky thing. It’s a like trying to walk through a whirlwind to find the middle of the storm, a place of sanctuary and peace. Once you climb up the opioid ladder there aren’t many places left to go, and it becomes less about medications and more about exploring alternative avenues of pain relief. Acupuncture is highly recommended to help with neuropathic pain (nerve pain from broken or damaged nerves) and also to help with the hot flashes from the menopause. But it IS hard to find an acupuncturist who has the relevant experience of dealing with a cancer patient with damaged nerves, but I’m still…
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Remission
Remission;Feels like a lie by omission,This is just an intermission,A fire awaiting its ignition, It seems like I am waiting,For a little cell to begin tainting,While I spend every minute hating,This disease that spends no time wasting, Corrupting my flesh, my blood, my mindMy existence here is timedI’ve never felt so blindMy future already signed When it comes I shall fight,I will not lose the light,I will struggle with all my might,For those who shine so bright, Remission;Feels like a lie of omission,This is just an intermission,A fire awaiting its ignition.
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Teddy
Somewhere in the vast galaxiesYou exist as completely as you do in my heartI watch the night skies trying to find youMy heart yearns for you, will never stop You are my lost little love,You are a feather on the breeze, free as a dove,You are everything my dreams and wishes are made of Somewhere in the vast galaxiesYou exist as completely as you do in my heartIf you want to find me, you need only look downI am the one watching the night sky for you Watching you burn so brightA little soul left forever in flightAlways setting my soul alight
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Darling Girl
Oh darling girlLet me carry youJust for todayJust for a little bitLet me hold you tightRest your head on my chestI’ll stroke the hair out of your eyesListen to the sound of my heartBeating calmly in my chestClose your eyesJust breatheLet your troubles float awayFind peace in the quietSleepOh darling girl;It’ll be alright
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Lonely is the Hour
Lonely is the hour,When the sound of sleep,Is silence;Deafening roars surround,As your mind starts to roam,Silence only growsWith each passing minute –Wrapping you within it,As if to keep you from weeping Lonely is the hour,When the sound of sleep,Is silence;When the sound is getting louderVivid colours in the darknessAre a plague upon your stageMemories dance before youAs the seconds fall awayInto the chasm of the night Lonely is the hour,When the sound of sleep,Is silence;Growing to its crescendo”Hush now!”While it’s screaming in your earRelentlessly shrieking with laugherAs it carries on its torture,Methodical and thorough Lonely is the hour,When the sound of sleep,Is silence;When the seconds last far longerAs the peace…
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A long overdue update
Oh goodness, it’s been such a long time since I did a proper update. Things have been hard in so many ways. Now I’m just trying to think of where to begin to really update you. I guess a while back in July seems a good place to start, when I first heard the term “long term prospects” and was told that palliative care would be starting to had over to the pain clinic. This was amazing news but with the end of my radiotherapy came the beginning of my neuropathy. Neuropathic pain is notoriously hard to manage. There are drugs available to help but they often aren’t the loan…
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Little Messages
Little messages travel down to nerves, That shouldn’t be. Little messages travel down to nerves, Medication to fight that caused so much harm I wonder why it was so important that I won, Destroyed all the receptors it could find Leaving me broken Little messages send pain through my body That shouldn’t be. Little messages send pain through my body They shouldn’t be Contorted, I try to fight. But my skin is aflame, My organs are gone, lost to the fire. Even breathing seems to be hard, All because Little messages carry the flames throughout That shouldn’t be. Little messages carry the flames throughout They shouldn’t be I need to…
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Ovarian Cancer
My really good friend Stephie Langford endured the hell of Ovarian Cancer when she was in her early 20’s. She managed to beat the odds and smash stage three Ovarian cancer. She is one hell of a woman for managing to take on and beat her cancer. Lots of love to you Stephie xx The aim of this post is to hopefully help empower you guys to know what to look out for, to understand what it is and how it might affect your body. Ovarian cancer is one of the most common types of cancer in women. It occurs in the ovaries which are located low down in the tummy,…
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Vaginal Cancer
This a cancer that was realtively new to me to be honest, I knew that cervical cancer could spread down into the vagina but this is all about cancer that begins in the vagina. The NHS says it’s rare, especially in women under 40 but I still think it’s well worth knowing about it, and how to look out for it. Symptoms of Vaginal Cancer include: Vaginal bleeding after the menopause Bleeding after sex or pain during sex Smelly or bloodstained vaginal discharge Bleeding between periods A lump or itch in your vagina that won’t go away Pain when peeing, or needing to pee a lot. If you have these symptoms…
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Vulval Cancer
While I was fighting cervical cancer, my aunt was going through Vulval Cancer and it was the first time I’d ever heard of it to be honest. When we think of cancers we mostly assume they are inside the body. Then we think about skin cancer being down to sun exposure, but the vulva isn’t exactly a part of the body you think of getting much sun exposure now is it? So, Vulval cancer is a rare type of cancer affecting women. Vulva is the word we use to describe the external female genitalia including: The lips surrounding the vagina (labia minora and labia majora) The clitoris The Bartholin’s Glands,…
