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A Health Update – My Stent & I.
Since May 2018 I have had a stent in my right ureter. Not to be confused with urethra. (Quick biology lesson: ureters run from kidney to bladder. Phew, it really was quick!) My pelvic tumour was pressing on it, causing my right kidney to become every so slightly enlarged because it was having to work ever so slightly harder than it was to pump urine down to the bladder. (Hence why kidney pain can be a symptom of advanced cervical cancer) These stents are temporary and need changing every 4-6 months. My first one barely made itself known until just before it was due to be whipped out and replaced,…
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Remission
This part of my life is something that is worthy of more than one insta post. It’s massive, beyond all understanding. It was entirely unexpected and triggered a whole host of wild emotions. Elation, total pure joy, disbelief, fear. Remission was unexpected. I remember being told that the cancer was incurable and asking if remission was a possibility. My oncologist told me that it wasn’t, the term remission was usually held for cancers like leukaemia, not cervical. It was then she told me that the cancer was “life shortening” (her exact words) and she progressed to give me 5 years left to live. That moment is one that will be…
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My Hysterectomy Broke Me
This isn’t the kind of post I’m used to writing. Despite trying to be honest about my experience I’ve always tried to find the positive in it too. Even in terms of having cancer itself I’ve been thankful it has given my girls a chance to really know their grandparents, that I have become more fearless in my pursuits and such. But, if I have come to learn anything in life, it is that the right path is oftentimes the harder one to walk and this completely rings true of that. This path, having cancer, is the hardest path I have ever walked and its beginning was particularly traumatic for…
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An Unexpected Update
We got an unexpected call from my oncology team, Friday evening to give us some news that niether of us were expecting. My scan had shown many small blood clots in my pelvis and lungs, and I needed to begin treatment, fast.
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The Final Cycle Update
Here it is, the final update for primary chemotherapy that really began in early July 2018 and finished on the 4th of January 2019. Before it began I knew it would be hard but it turns out nothing prepares you for chemo. We barely began and had to stop for me to have a colostomy. From then on we rolled with the punches. Stent changes and virus’ cost me good weeks and the pain from flares was like nothing I had ever known.
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Stay Cervix Savvy
It’s great to see so many people posting about smear testing and how important it is, but having been diagnosed in between smears, I want to remind you all to stay cervix savvy always.
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I believe in Magic
I’ve been in the hospice about two weeks now. As a result, most of the staff know me well. I’ve been cared for by them, nursed by them, supported by them and carried along by them too. It’s been a real up and down ride between crying that I’ve wanted to go home, to see my kids and be with my family, to be amongst my comfort, my world; and of knowing that I couldn’t currently be in a better place, the help I need just a buzz away and my two girls saved the trauma of their mummy in excruciating pain.
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Chemo Round 4 update
Well! Hello there! It has been a while, hasn’t it? It’s been a particularly challenging cycle and it has sadly kept me from doing what I love most – writing.
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A Really Honest Chemo Update – Round 3
I promised myself when I started this blog I would keep it true. That no matter what the reality of my situation was I would share it. Not because I want to aim to scare anyone, because I don’t, or even really to be “educating” people in what it’s like to be a cancer patient, because I’m fairly sure it’s one of those things you can’t really understand unless it happens to you – and please god none of you find out. But because, well, the internet is a place full of smoke and mirrors, where people only share what they want to share and that’s always the wonderful, beautiful…
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Chemo Round 2 Update
So, this is round 2 (or 3) depending on how you look at it. The fatigue hit me hard, as always and then as the steroids finished the pain started to kick in and oramorph was no longer helping so we moved onto fentanyl tablets which dissolve under your tongue (and actually don’t taste too bad – bonus!) which worked for a while, until the night that it didn’t and we found that we were calling out nurses every 4 hours, except for during the night when I attempted to get through on fentanyl. In the end, after tripling the dose of fentanyl to no effect, we opted for a syringe…
