God, it has been a shockingly long time since I have done a full blog post, but Tom and I just finished watching Home Before Dark on AppleTV, that features the story of a nine year old journalist and it made me remember why I started writing my blog in the first place so I decided to get back to it! I have plans to begin a YouTube channel where I will make some short educational videos about different gynaecological cancers as well as share my story and maybe some vlog type videos too.
But before I update on how we all are, I want to take a moment to say 2020 what is going on, man? I mean seriously? Donald Trump started it by nearly causing world war three a few times and then all of a sudden we are in the midst of a pandemic which may or may not have started because some bloke in China ate a live bat!?!? And, because it’s seemingly impossible for Trump not to make ridiculous statements it appears we will be trialling injecting disinfectant’s into humans – starting with him.
So! An update on me and where we are currently at: The month is April and the year is 2020. We are in full quarantine here at Taylor Towers, as I am a high risk patient where COVID-19 is involved. We have to have our shopping dropped off on the doorstep. Because we have an outdoor space the size of a postage stamp the girls are staying with my wonderful in-laws who between them (Granny, Grandpa and Aunty Sophie), are doing an amazing job not only taking care of my gorgeous girls, but my sister in law has become Miss Sophie in tackling the homeschooling aspect for us, and I could not be more grateful to them all. The girls are having a blast running around in the garden where they have a swing set, play house, sand pit and paddling pool to keep them entertained for hours on end. We Face Time all the time and the girls know they can talk to us whenever they want. I miss them like crazy and the house is eerily quiet without them.
Health wise the pain is still hideous, we haven’t been able to lessen any of my pain killers and this time without access to injectable oxycodone without risking exposure to the virus means we are just trying to get by as best we can. We discovered that I have Avascular Necrosis in both hips. This can happen when exposed to high doses of steroid over prolonged periods of time, I was on a very high dose throughout chemotherapy and then had to go back on a steroid when we discovered that those doses of steroid had shut down my adrenal glands which meant I wasn’t producing enough cortisol. So, in short and to be less confusing: there’s been A LOT of steroids. Steroids can slowly start to destroy the tiny little blood vessels that supply joints and bone with oxygenated blood and so over time, the bone in the joint starts to die off and become ragged so walking begins to become painful. This has happened in both hips, but I think it is worse in my left than my right. So what does this mean? It means I’m going to become a bionic woman! No, not really, I’m just going to be having my hips replaced. It would be pretty cool to be a bionic woman, but knowing my luck I’ll just end up beeping when I go through airport security afterward.
So that’s where we are right now. I hope you are all staying safe in lockdown and aren’t going too stir crazy xxx